Terry is a 19-year-old man with muscular dystrophy who lives with his parents. His parents are his main carers and external support is very limited. His younger sister also lives at home. Terry uses a powered wheelchair for mobility.
Terry’s short break
Holiday respite / short breaks were offered annually at a predetermined time which was agreed with Terry’s whole family. Terry’s family appreciated this as it gave them all the opportunity to plan well ahead and achieve maximum benefits from the breaks. The break itself comprised of Terry enjoying a five day break away with a group of friends who also had muscular dystrophy at an activity centre which had a dedicated respite unit which had support staff who were able to cater for all of Terry and his friends’ needs. During this time Terry was supported to engage in a range of activities that most 19 year olds enjoy such as going to the pub, listening to music, going out for meals and to the movies, playing DVDs and computer games as well as wheelchair skating.